About Us

Innovative Treatments, Research and Compassion

Our mission is to help you overcome the challenges of living with CNS congenital anomalies through support, innovative treatments, research and compassion. This is what guides us to deliver the best information that medical science has to offer in order to educate and empower families. Whether it is your child, your grandchild, or the child of a friend or acquaintance, you are not alone on this journey — and we’re here to help.

Dr. Frim

Videos: Dr. Frim

How We Bring Our Mission to Life

Establish a Network of Medical Experts

The challenge in dealing with CNS congenital anomalies lies in defining and understanding the actual condition — which makes finding the right resources truly daunting. We work with medical professionals and researchers alike to better define these conditions, while connecting patients and families with the right medical experts.

Create and Maintain a Knowledge Database

We want to make it easy for you to find the answers you need. That’s why we are building a database with easy-to-understand information on the broad spectrum of CNS congenital anomalies. Please check in regularly for updates.

Support Innovative Research and Treatments

The breakthroughs and cures we seek to find start with research — which is why we are dedicated to supporting the physicians who are working to find the causes, impact, and the latest and best treatment options for these conditions.

Read how a gift brings new hope to patients and families affected by central nervous system disorders.

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Progress Update: December 2021

Despite the challenges faced this past year, te Margaret Hackett Family Center Program has marked significant progress across a range of initiatives. Topping the list is the engagement and collaboration of a World Class consortium of Neurosurgeons from leading Medical Centers across the United States. Read about this effort and more in our latest Progress Update.

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Progress Update: January 2021

In 2020, Margaret Hackett Family Center worked to advance key initiatives, including building awareness of our program through outreach to other organizations. We also launched our new website, welcomed new staff, hosted our second annual symposium, and expanded our multi-institutional patient database. Read about our exciting growth in our latest progress update.

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Progress Update: December 2019

Since its launch in 2019, the Margaret Hackett Family Center faculty and staff have made great strides toward achieving key goals, including building a warm and compassionate destination for care, organizing a research consortium, and constructing a knowledge database supporting clinical and translational studies. Read about our growth in our latest progress update.

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Third Annual Margaret Hackett Family Program Symposium, June, 2021

In spite of the challenges that we have all experienced thru the pandemic, we are pleased to report that on May 21, 2021 we conducted our Third Annual Margaret Hackett Family Center Symposium via webinar. The presenters highlighted the range of issues around the diagnosis and treatment of central nervous system congenital anomalies and addressed approaches to treating specific conditions. You can read a synopsis of the event and meet the presenters via the attached link.

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Second Annual Margaret Hackett Family Program Symposium

We are continuing to increase awareness of central nervous system congenital anomalies. Our most recent symposium in May 2020 introduced a variety of congenital syndromes and the challenges of their treatments to a group of healthcare professionals dedicated to their treatment. Read a synopsis of the event and view our panel of expert speakers.

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Support Our Mission

We want to provide the very best information, research, treatment, and care for those challenged by CNS congenital anomalies. Please consider donating to our cause to help us deliver on our mission to make a difference in the lives of patients and families.

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